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| A panel of my "Letting Go Lantern" © 2017 Toni Becker, Whimsical Jewels, Artfully Healing |
For many weeks now I have fought kicking and screaming with so many people I'm exhausted. I've felt unheard, thinking am I not being clear? After such in depth conversations and clear examples, I'm left wondering how my words could have fallen so hard on deaf ears. The result is a suffocation I can't describe. All the while people on the sidelines are telling me to scream louder, advocate harder, do this do that... I've done all I can do. I've done the best I could do. And yet, I don't feel like it's remotely over or nearly enough. And I'm wondering how much I have left to give and if I have the strength to keep fighting. I'm tired. No, I'm exhausted. I'm to the point now I can barely put words together to form a coherent sentence. Sitting here typing this is taking everything I have, but I know at the end I'll feel better so I keep stroking the keys. Not giving a shit what it sounds like, or if it makes any sense. The blog is artfully healing... and this is part of my healing and the art form I'm using in this moment to soothe my tired mind, bleeding heart, and exhausted frame.
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| A panel of my "Letting Go Lantern" © 2017 Toni Becker, Whimsical Jewels, Artfully Healing |
I wrote the above passage on 7/16/18, but never published it. I'm not sure why I left it as a draft, but I did. And now as I read the above words, I realize it feels complete and incomplete simultaneously. Now three months later my words are still relevant to my daily life, but the anticipatory grief that I feel is heavier and more of a reality. At the time of writing the passage my mom was at a rehab center getting ready for discharge. She had been under hospital type care for a month... a week in the ICU, a week on a regular floor, and then discharged to a rehab facility where she spent two and a half weeks. I battled with all of them, advocating for her care making sure she was taken care of and receiving the care she deserved. Ultimately she was discharged before she was ready due to insurance, and my choices were limited so I brought her home with us. The fighting and advocating didn't stop, but thankfully it hasn't been as intense. Now with hospice coming into our home, I find myself breathing a little easier regarding her care. The care she's receiving right now is exactly what she needs and quite frankly what everyone needs to receive throughout their life span, not just at the end of life.
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| My beautiful Mom on her birthday 10/11/18 |
Today the grief is heavy. I know my days with her are numbered, and everything else that goes on in one's daily life seems unnecessary and quite frankly a waste of my time. I find myself thinking about all the stuff we waste our energy on that serves no purpose and lacks meaning. I feel my mind drifting, wishing I had the means to be with her around the clock for this last journey. I'm mad because I can't be. I'm sad that it's happening. This morning, I awoke at 3 am with a heaviness in my chest and a wave of sadness that stole my breath. These last few days as I've watched my mom, in her own way she has told me to back up. "Toni, you worry too much." In my mind, I reply I know but I only have one mom and she's dying. I feel her energy and things start melting away. It's here that I look at her. I see her clearly. I realize some of her behavior is fear, sadness and her own grief. I'm sure she doesn't want this to be the end either. She feels the same as us... She wants to stay as long as she can and we want her to be here for as long as her spirit allows. Her light is magnificently beautiful and I realize how blessed I have been to have had such an incredible woman as a mother. My heart is heavy. The thought of moving forward without her steals my breath and makes my chest feel like an elephant is sitting on me. This is grief. This is sadness. This is a big fat stinking mess, yet oh so beautiful. Welcome to life..... and death. A full circle.
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| My handmade birthday gifts for my mom Handmade Journal & Canvas Necklace © 2018 Toni Becker; Whimsical Jewels & Artfully Healing |
